ME Vereniging Nederland

Patiëntenvereniging

De ME Vereniging Nederland is de Nederlandse patiëntenvereniging voor de postvirale hersenziekte myalgische encefalomyelitis. Er zijn in Nederland minstens 14.000 mensen met ME, waaronder ook kinderen. De ziekte is in veel gevallen chronisch en komt onder alle bevolkingsgroepen voor.

Projecten

De Stichting ME Research voert diverse projecten uit voor de ME Verenging Nederland:

Koepels

De ME Vereniging Nederland is aangesloten bij het Samenwerkingsverband Pijnpatiënten naar één stem en de Dutch Brain Council.

Myalgische encefalomyelitis

Interview – Guido den Broeder

  • "Education is the most powerful weapon which you can use to change the world."

    Nelson Mandela
  • “There are Nobel Laureates, several members of the National Academy of Sciences, biochemists, biophysicists, geneticists, immunologists, neuroscientists, experts in public health and infectious disease, epidemiologists, and physicians eager and ready to study this disease, were adequate funding made available

    Ronald Davis
  • "I think it is a mess. There is not a sustained, organized plan on the part of the government to increase research"

    Anthony Komaroff
  • "Potentially incorrect conclusions, based on faulty analysis, should not be allowed to remain in the literature to be cited uncritically by others"

    Martin Bland
  • "Silence in the face of evil is itself evil: God will not hold us guiltless. Not to speak is to speak. Not to act is to act."

    Dietrich Bonhoeffer
  • "In my experience, (ME) is one of the most disabling diseases that I care for, far exceeding HIV disease except for the terminal stages."

    Daniel Peterson
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